Well, this is fun. On 13/May I went to an outpatient Botox, nerve block procedure. Everything went fine with the occipitals and the left front super orbital. However the right superorbital was everything except nice. My body fought it the entire times. The Botox went where it wanted. It was a mess.
A couple days later, the injection sites were still sore on the right sides and a severe cluster had set in. (8-10 baseline with clusters spiking much higher). I contacted Dr.V and ended up going to the Infusion Center for daily med/painkiller infusions. The dilaudid was nice. It and Benadryl kept the pain to a dull roar for quite a while. Alas, since it was outpatient and the clusters are Legion, it didn’t do much good for me. Yesterday I checked in to Mayo until Saturday.
The docs and all staff are very nice, always. Sometimes it’s a little unnerving. The nurses and cnas are all excellent and go above and beyond the calmly of duty to help you and keep you comfortable. That is a nice change fro Diamond where only those who know and like you give excellent service. On the bad side, everything is a monolithic process. Teams meet, agree, issue and activate orders. It takes a lot of time for decisions to be make as they’re carefully weighed. It all works out in the end though.
My only other point of contention is that this facility deals with migraines, any kind of migraine. They have my migraines under control for the most part. However, I’m not sure that they are equipped to deal with clusters. I keep trying to explain how my body deals with this and they keep ignoring what I say. I’m going to have to be a little less nice about it. Benadryl works for me, Dilaudid does too. The bad news is that it’s a narcotic and has dependency issues (I’m aware of that and don’t have an addictive personality) This 300-500 mg increase in Lyrica (same set of issues) is the same thing. Lyrica is another controlled substance with a wide profit margin.
train of thought just left and took me with it 😦
cazandoconejos 