Hold on…fingernails

This is really starting to get to me. I have this constant, persistent headache every fucking day. It’s still better than Chicago, but it’s really starting to wear me down. There are now 2 types and 1 that has starting visiting. The two are the normal cluster and migraine. I know where and when they hit. I know how to get rid of the migraine. It’s pretty easy. I pop a Frova and about 15-20 later, the migraine is gone. I’ve even had some silent migraines out here. Those are actually kind of cool. They come on with all of the symptoms, except the pain. Those, I really don’t mind.

The clusters, as usual, have set up their little schedules and don’t stray too far from them. I can typically tell the time as far as they’re concerned. My friends think it’s funny that I can say, ‘It’s 9:30.” and they’re “How did you do that?” “It’s cluster time.” I don’t think it’s so cool. At least I know what to expect during the day. These, I know well. I know their symptoms. I know when one is coming on. I feel my eye start to droop and tear. I feel the restriction of my optical nerve. I feel my forehead swell and continue down the SPG nerve ganglion into my jaw and teeth when they’re really, really bad. I know what to expect from them even the worst of them that have me on the floor screaming in pain. Sometimes they play nice and sometimes they don’t. At least December’s calendar resembles August’s. Maybe that means that they’ll settle down a little bit.

Now for the devil that I don’t know. This one acts kind of like the clusters, but there are a few key differences. It never goes away. The clusters sink into my comfort zone after 15m-3h. These are constant. My brain is always stuck on brain freeze. When one comes on, it affects my right eye, but instead of simply constricting the optical nerve, I lose vision in my right eye. A numbing sensation goes down my right arm and I lose control of my right hand. I don’t like these because I don’t know what they are, I can’t control them and none of my medications have any effect on them.

I have to email Dr. Urban tomorrow and mention these new symptoms. I don’t know what he’s going to say. While I’m much better off here in Phoenix, in Chicago all of these little headaches and whatever all melded into one. Here I feel them individually and I really don’t like it. It’s wearing me down much faster now. There are only a few things that are keeping me from buckling under the weight of having this many syndromes at the same time.

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Former Spanish/ESL teacher (22 years). Now I'm disabled bc of a trio of neurological disorders that make it impossible for me to hold a thought for two minutes. I'm learning how to deal with my life now. It's one day at a time.

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